Community tips

For living a little bit better, day to day

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  • Going on Holiday

    "If you're planning on going on holiday, ask for a letter from your Dr. confirming your fit to travel a couple of months in advance because it can take them a while to get the letter to you and you'll need it for travelling."

    Lucy

  • Going on Holiday

    "If you're still on treatment but want to go on holiday then just check with your doctor or nurse when the best time to go is so you can avoid high risk periods, like when your cell counts are likely to be low"

    Andrew

  • Going on Holiday

    "I took a list of all my prescription medications from my Dr in case someone stopped me at customs and wondered I was taking so many pills with me!"

    Michelle

  • Going on Holiday

    "Take a few days extra supply of meds with you when you're going away, in case of unexpected delays getting back home."

    Stuart

  • Going on Holiday

    "Don't forget all your pills need to be in their original packaging with the prescription stickers on them to get through customs"

    Diane

  • Going on Holiday

    "Some of my medicines needed to be kept in a fridge so when I travel I keep them in a cool-bag."

    Ian

  • Going on Holiday

    "If you're travelling in Europe you only need a European Health Insurance Card but if you want extra cover or piece of mind then you can get separate travel insurance too "

    Nancy

  • Going on Holiday

    "When I was planning a holiday overseas, I found the list of non-European countries offering free or low cost emergency care on the NHS website really useful."

    Matthew

  • Going on Holiday

    "If you're lucky enough to be going somewhere exotic for your holiday don't forget to check if you need to get any vaccinations. I'd say get advice from your doctor at least 6 weeks before you travel."

    Mandy

  • Going on Holiday

    "When you're thinking about your next holiday, remember that different countries have different vaccination requirements and if you're having treatment or even up to 6 months after you've finished chemotherapy, you shouldn't have live vaccines"

    Shilpa

  • Going on Holiday

    "When I went to Vietnam there were lots of mosquitoes everywhere! I avoided going out at dusk because I knew this was prime mosquito time"

    Duncan

  • Going on Holiday

    "I made sure my hotel had mosquito nets in the rooms to avoid getting bitten whilst I was asleep."

    Emma

  • Going on Holiday

    "My children live 7 hours away from me so whenever I go to visit them I make sure we stop a few times to stretch my legs and walk for a few minutes to help stop my lymphoedema getting worse."

    Susanna

  • Going on Holiday

    "When I'm on a flight I make sure I get an aisle seat so I can get up and walk around frequently to help reduce my risks of getting a blood clot in my leg veins"

    Nigel

  • Going on Holiday

    "I don't like drinking water so I take a few of my favourite tea bags with me to help stay hydrated whilst I'm away."

    Neil

  • Going on Holiday

    "When I was on holiday I found the hot weather made my lymphoedema much worse so I used to avoid the midday sun and stayed cool wearing long, loose fitting clothes."

    Shirin

  • Going on Holiday

    " If you're abroad only drink bottled water and avoid fresh fruit or salads at restaurants because these will have been washed in tap water and you don't want to risk picking up a tummy bug from it!"

    Mark

  • Going on Holiday

    "I got a nasty tummy bug when I was on holiday and I think it was because of the ice-lollies I used to eat from the street seller. I didn't realise that they used tap water to make them so they are best avoided"

    Alice

  • Going on Holiday

    "I always take a few sachets of diaoralyte with me just in case I pick up a bug when I'm on holiday"

    Jo

  • Going on Holiday

    "My chemotherapy made my skin really sensitive to sunlight so I used to stay covered up and avoided sitting outside between 11am-3pm when the sun is at its strongest."

    Leanne